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Living with Serious Illness

Information and resource guide for Lane County, Oregon

 
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Family relationships

 
 
Monica  

"My family has never been very close. But somehow, when we got the news about Mom, we all came together in a different way. I think we all realized time was running out and this was our last chance to connect with her. Each of us found a way to rise to our ‘better selves.’ It took some courage to reach out, but it was worth it. The benefits have continued even after her passing."

 
 
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Common barriers to open communication
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Learning the importance of relationships
     The news that an illness has advanced to a point that a cure is unlikely often is met with a level of distress and vulnerability never before experienced. This situation brings out a variety of responses. A genuine, caring, and comforting connection with loved ones is usually what is most needed and longed for. One of the great gifts of the dying process is that it highlights the importance of relationships in human lives.
     Despite the desire for authentic connections at the end of life, it is not uncommon for dying persons and their loved ones to confront barriers to open and loving communication. Sometimes these barriers cannot be overcome. There are, however, many stories of dying persons and their loved ones finding a level of care, forgiveness, and understanding that no one would have thought possible before the illness was diagnosed.
     In a recent issue of The New Yorker, comedian Steve Martin talked about the experiences he had when his father was dying. In one story, Martin and his father sat silently together, when his father broke the silence, saying, "I wish I could cry. I wish I could cry." Forever thankful that he pushed forward, Martin asked his father, "What do you want to cry about?" "For all the love I received and couldn’t return," his father said. Martin reflects, "It was as though an early misstep had kept us forever out of stride. Now, two days from his death, our pace was aligning and we were able to speak." (Return to list)

Common barriers to open communication
     Death is considered a taboo subject in our society and is rarely talked about with openness or honesty. When someone is diagnosed with an advanced illness, often both the ill person and their loved ones are unprepared and fall into a crisis state. They are faced with two difficult challenges: the tremendous impact such a diagnosis has on emotional and spiritual well-being and the need to make complicated medical choices.
     The fear and sorrow that follows a terminal diagnosis can create an environment in which attempts toward authentic communication may collide with long-entrenched patterns of communication and deeply submerged feelings. For example, it is not uncommon for family members to be stuck in negative or unproductive patterns of communication they have used for many years. Sometimes there is an unspoken agreement to remain superficial or polite with one another to avoid the deeper issues that lie below the surface. Perhaps this has occurred because of a miscommunication years earlier. To avoid being hurt or rejected again, there may be a hesitation to be anything other than superficial. There also may be fear that if a difficult topic is brought up, it will open the door to all of the feelings that have been suppressed. When a family member is dying, this maybe avoided for fear of creating a worse situation.
     One way interactions can become stuck is when one or both parties refuse to forgive the other. Entire relationships may be built around past transgressions for which one person refuses to apologize, or an apology has not been accepted. There may be disagreement about who really is at fault. To let go of anger and to forgive can be very challenging. In some cases, a good deal of a person’s identity may be wrapped up in being the victim. Indeed, both parties may feel victimized, one by being the recipient of an unkind deed, the other by being told that what they did was unforgivable.
     Even in families that enjoy generally good relationships, communication may be difficult when a family member faces a serious illness or death. For example, there may be confusion about "saying the right thing." Or a family member may try to hide their feelings of sadness and loss for fear of burdening their dying loved one. (Return to list)

Getting through the barriers
     If only we could go into a situation when a loved one is dying with the hindsight that comes after death. Then we would know, as Christine Longaker says in her book Facing Death and Finding Hope, that the pain that stays with us is the love we held back.
     Finding ways to overcome the barriers to expressing love when someone is dying can be very challenging. We may not want to risk being vulnerable or being hurt again, especially if these will be our final memories of a loved one. We may not be willing to release our old positions and try something unfamiliar.
     Christine Longaker suggests that, while these are understandable feelings, they simply are expressions of fear. This fear, if examined clearly and honestly, can be overcome. These feelings do not need to be taken so seriously. What truly is at risk is undoubtedly of much less consequence that what is feared to be at risk. Ultimately, these fears are simply an expression of worrying about one’s own self. Changing that perspective to concern and love for the other person will lessen fear, open the heart, and bring courage.
     But what if the other person responds to an honest attempt at sincere communication with anger or bitterness? What if they say things that are very difficult to hear or things that are dishonest or untrue? Of course, this may happen.
     We have no control over how someone else will react to what we say or do. However, we can be responsible for our own expectations and feelings. We can do our best to release our old attitudes and be as open and loving as possible. We can choose to forgive and free ourselves from old wounds. We can listen to the other person with the intention of understanding their feelings. Perhaps we can even find a bigger perspective, a sense of humor about our own emotions and predicaments. We can let go of our fear of how the other person will respond. Then, even if the other person responds in the old expected ways, space has been created in the relationship for more authentic feelings to emerge. Patience will probably be necessary, but never underestimate the power of unilateral change. If just one person in a dynamic can find the courage to engage with an open, loving heart, others may follow. (Return to list)

 
 

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This website was created by volunteers from Partners to Improve End of Life Care, a community coalition dedicated to improving end of life care through education, advocacy and support.
 
   
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