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Living with Serious Illness

Information and resource guide for Lane County, Oregon

 
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Managing pain

 
 
  "I just want my mom to be comfortable. I can’t stand to see her hurting. If she has to die, at least let her last weeks be without pain."

 
 

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Types of pain medicine
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Side effects of narcotic medication
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Pain relief without medicines
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Myths and facts about pain medication
     The fear and reality of pain are often major concerns at the end of life. There have been many advances in pain treatment; however there are still many myths that may prevent patients and family from seeking and/or accepting pain medication.
     It is important to encourage patients to be honest and accurate in reporting their symptoms. The majority of patients report less pain than they actually feel. This may be due to cultural or personal beliefs, for instance, " I shouldn’t complain." Trained hospice social workers, nurses, and/or palliative care specialists may be especially helpful in working with patients who hold these beliefs.
     Fear of addiction or dependency may prevent patients from taking adequate medication to treat their pain. These fears also may prevent family caregivers from giving needed medications. In reality, addiction (which is psychological or emotional dependency) is a rare occurrence when narcotics are used for the purpose of treating pain. Tolerance, or physical dependence, may occur. However, it is difficult to know if the need for increasing dosages is a developing resistance to the drug or rather the disease simply getting worse. Either way, in the context of a life threatening illness, increased pain probably indicates a need to increase dosage.
     There is no ceiling on the dosage of narcotic medicines for the terminally ill. One is limited only by the occurrence of side effects, which might range from none to severe. Open and honest communication with the patient's physician and nurse is essential to ongoing, effective pain management. (Return to list)

Types of pain medicine
     There are two basic types of pain medication: non-narcotic, used to treat mild pain; and narcotic, which is used to treat more severe pain. Acetaminophen (e.g., Tylenol) and aspirin are the most common non-narcotic pain medications. They are available without prescription and are also useful in the treatment of fevers. Morphine is an example of a narcotic pain medication. Many medications, for example Vicodin, combine a mild narcotic with a non-narcotic pain reliever such as acetaminophen. Patients who take both non-narcotic and narcotic medications must check with their pharmacists, physicians, or nurses to avoid harmful effects.
     Ongoing pain is best managed with a scheduled, long-acting medication in combination with a short-acting medication that can be taken for breakthrough pain. Typically, this involves a morphine patch that sticks to the skin and administers pain medicine over a 12-48 hour period, with pills available to take for immediate relief if the pain "spikes" and breaks through the effects of the patch. (Return to list)

Side effects of narcotic medication
     Constipation is a very common side effect of pain medication and is usually treated with dietary changes, and/or over the counter medications such as stool softeners. Nausea is also common and may require a prescribed medication. Ask your doctor or call your hospice nurse for the best treatment options.
     Initially, a patient may sleep heavily and appear sedated. This is not uncommon and usually subsides once the patient has a chance to rest and adjust to the new medication. If the patient continues to sleep a lot, the doctor should be consulted regarding the appropriate dosage and whether or not a change in medication may be warranted. It is always important to remember that whenever possible, the patient should have the primary voice in discussing any and all treatment options. If the patient prefers to sleep rather than experience pain, this is to be respected. (Return to list)

Pain relief without medicines
     In addition to medicines, patients and their caregivers can utilize a variety of non-pharmacological comfort measures. These include hot or cold compresses, massage, or position change. There are also distraction techniques, such as meditation/visualization, music, television or videos. There are books and tapes available to help with non-medicinal forms of pain relief. Be aware that when distraction helps, it does not mean the pain was not real to begin with. Distraction simply blocks the pathway of the nerves leading to the brain and, thankfully, keeps the brain from registering discomfort.
     If you are looking for other non-pharmacological approaches to pain management, you might want to consult complimentary medical practitioners such as the chiropractors, osteopaths and acupuncturists involved in the Pain Society of Oregon. These professionals often have treatments that can help. (Return to list)

Further resources
     We suggest you go to the websites sponsored by "Growth House" and the Department of Pain Medicine and Palliative Care at Beth Israel Hospital in New York. (Return to list)

 
 

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This website was created by volunteers from Partners to Improve End of Life Care, a community coalition dedicated to improving end of life care through education, advocacy and support.
 
   
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