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   Living fully today,
   planning for tomorrow
 

Living with Serious Illness

Information and resource guide for Lane County, Oregon

 
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Talking with your doctor

 
 
Laura   "There’s a lot to think about when you reach this stage. Sorting it all out took some time, and some thought. But now I know what’s out there and what I want. I explained it to my doctor and my family. Now we make decisions together based on my priorities."

 
 
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Getting to know your self
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Talking, talking, talking
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For more information
 
 
How do I become my own healthcare advocate?

     - Know yourself first. Reflect on your values, your current health status and goals, and how you define quality in your life.
     - Learn about the healthcare choices you have. Lane County has a wide variety of traditional allopathic and complementary healers.
     - Find out about the healthcare delivery system. Visits to a hospital, nursing home, hospice, or practitioner’s office are all very different experiences and require preparation.
     - Talk with experts. You’ll find a wide variety of opinions and will have to sort out what is best for you.
     - Document your wishes with an advance directive.
     - Inform your family and healthcare team about the advanced care planning you have done.
     - Be prepared to work with health professionals so that they know your wishes.
     - Ensure that everyone involved in your healthcare can respect the decisions you’ve made for yourself. (Return to list)

Getting to know your self
     It’s not easy to find the time and energy to think seriously about the end-of-life care we may need. It means facing our own mortality, which is hard for most of us to do. There are significant benefits in planning ahead, rather than during a health crisis. Knowing what you want, and being able to use the healthcare system wisely, will help you get the healthcare you want. Planning ahead is also a gift to anyone who may have to make healthcare decisions on your behalf. They will know they are advocating for the choices you have made.
Completing a values inventory will be different for everyone. Documenting your current health, your view of the future, goals you have in life, what makes life worth living, healthcare preferences, treatments you would want at the end of life, and other preferences you have for your care would be important topics to consider. (Return to list)

Talking, talking, talking
     Once you have an understanding of your wishes for healthcare, it’s important to tell others. Start by having a discussion with your healthcare provider. Share with them your choices for healthcare, and share any advance directives you have created.
     Whenever you have a question about your health care, ask your doctor or practitioner to explain what is being recommended. Ask to hear about the risks, benefits, and alternatives. Only by having all this information can you make a truly informed decision.
     Make sure your doctor or practitioner can honor your wishes. Remember, too, that your wishes can change over time and you may want to have future discussions as your life circumstances change.
It also is important to talk with friends, family, and anyone else you want to have make decisions for you should you not be able to speak for yourself. Make sure your wishes are understood by all who need to know. Ensure that a bond of trust exists and that your wishes will be honored. (Return to list)

For more information
We suggest you contact the Partnership for Caring
200 Varick Street
New York, NY 10014-4810
Telephone: 1-800-989-WILL
(Return to list)

 
 

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This website was created by volunteers from Partners to Improve End of Life Care, a community coalition dedicated to improving end of life care through education, advocacy and support.
 
   
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